VLCAD Connections Around the Globe
Living with VLCAD deficiency can sometimes feel isolating, especially when you may not know another individual or family nearby who truly understands this journey.
VLCAD Connections Around the Globe is a Maddie’s Spark Foundation initiative created to help individuals and families living with VLCAD find connection, community, and support—wherever in the world they may be.
Through our growing VLCAD community, we hope to better understand where families are located, learn what resources and support you need most, and, for those who choose to participate, help connect you with others who understand the VLCAD journey firsthand.
Get started by completing the 5 minute survey to the right or clicking the button below.
Why Join?
Find Your Community
Help us understand where VLCAD individuals and families are located around the world.Connect With Others
Choose whether you'd like Maddie's Spark to help connect you with another individual or family navigating VLCAD.Help Shape Future Resources
Tell us what support, information, and programs would make the biggest difference in your VLCAD journey.
Your Privacy Matters. VLCAD Connections Around the Globe is NOT a public directory, and your personal or contact information will never be published or made publicly searchable through this initiative. Participation is completely voluntary. Maddie’s Spark Foundation will only share the specific contact information you authorize with another participant when helping make a VLCAD family connection. You are always in control of whether you choose to be connected and what information you give us permission to share.