Fueling the Future Partners
Advancing research and awareness for VLCAD and other long-chain fatty acid oxidation disorders requires collaboration. Our partners help fuel research, expand education, and support families affected by these rare metabolic conditions. By joining our network of partners, you can help accelerate progress, increase awareness, and bring hope to individuals and families living with LC-FAOD.
Together, we can make a lasting impact.
UPMC Children’s Hospital Foundation
UPMC Children’s Hospital Foundation is the catalyst that unites communities and contributors to create healthier futures for all children through life-changing care and cutting-edge research. Annually, UPMC Children’s Hospital of Pittsburgh serves more than 1.5 million children from our region, all 50 states and nearly 70 countries around the world.
Sawyer's Race For Research is dedicated to saving children's lives by funding research for Trifunctional Protein Deficiency (TFP), a long chain fatty acid oxidation disorder. Their goal is to raise money to improve treatments and find a cure for this devastating disease. They’ve raised over $425,000 and have funded cutting-edge research projects.
Sawyer’s Race for Research
Help us Fuel the Future!
Progress happens when passionate people come together. At Maddie’s Spark Foundation, we believe that meaningful change for children living with VLCAD and LC-FAOD will only happen through collaboration, innovation, and shared purpose.
We are always looking to partner with clinicians, advocacy organizations, corporate sponsors, and community partners who share our commitment to improving the lives of individuals affected by fatty acid oxidation disorders.
Whether you are advancing scientific research, supporting families, developing new treatments, or looking for a meaningful way to give back, your partnership can help turn hope into progress.
Together, we can accelerate research, expand awareness, and build a future where children with VLCAD and LC-FAOD can live healthier, fuller lives.
If you are interested in partnering with Maddie’s Spark Foundation, we would love to connect with you.
Join the Spark Movement and help us create lasting change.