Upcoming Events
2027 Be the Spark Celebration
Join Maddie’s Spark Foundation on July 17, 2027 at Donaldson Park in North Fayette Township, PA for the first annual Be the Spark Celebration, a family-friendly VLCAD Deficiency Awareness Day event featuring the 17 Minutes for VLCAD Family Walk, Touch-a-Truck, Kids Zone, vendors, food, raffles and more. All proceeds will benefit Dr. Jerry Vockley’s VLCAD research at UPMC Children’s Hospital of Pittsburgh.
2026 Spark-ghetti Dinner
Join us for an evening of great food, community, and purpose at the Maddie's Spark Foundation Spark-ghetti Dinner. This family-friendly event brings supporters together to enjoy a delicious spaghetti dinner, silent auction, and inspiring stories while raising critical funds for the Early SparCK Initiative.
Every ticket purchased helps accelerate research at UPMC Children's Hospital of Pittsburgh in partnership with Dr. Jerry Vockley, advancing the development of better disease management tools and future therapies for individuals living with VLCAD deficiency. Whether you're attending with family, friends, or coworkers, your support helps bring hope to rare disease families and moves us one step closer to a brighter future.
Come share a meal, connect with our community, and help us Be the Spark for VLCAD research.
Raffle & Rhythm for Research
Join us for Raffle & Rhythm for Research on August 28 at Beck’s Garage in Commercial Point, Ohio!
Enjoy live music, raffles, and a night of fun while making a real difference for families living with VLCAD deficiency. All funds raised will support Dr. Jerry Vockley and his research team at UPMC Children’s Hospital of Pittsburgh as they work to advance better disease management tools, emerging treatments, and gene therapy for VLCAD.
Come have fun and help us fuel the future for VLCAD research!